Confirmed Diagnosis
After the long term monitoring, the doctors contacted us and confirmed that Alyssa has a mass on her brain which is about the size of a walnut. According to them, it isn't growing and appears to be benign. The terms they have used for this mass are: tumor, dysplasia and lesion.
The bottom line is that it has to be removed. Right now, we have a tentative date of July 17, 2008 for the surgery. We've been told that the surgery takes about 4 hours (5 hours if they do a brain scan while she is still opened up to confirm that all the 'hot spots' have been removed) and then 2-3 weeks initial recovery after which she can go swimming.
Thankfully, they don't fully cut off the hair... only a portion where the incision is made. Then it takes 3 months for full recovery to contact sports like soccer and karate.